Joined-up disability services
I have a lifelong disability. When I was a child, there was a clinic at the hospital for every child with that disability, and they were able to meet with all of their specialists over the course of the day. I still engage with several specialists, but now that I've aged out of the children's hospital system, it's much harder to resolve things. As I age my health gets 'weirder' and it would be so useful to have all the specialists on the same page to suggest whether something might be related to my disability.
I would also like to see one directory where people with disabilities can look up the type of service they need and find a provider or process easily - for example, where do I go if my equipment needs to be upgraded or repaired? What follow-up/treatment needs to be initiated by my GP, and where can I self-refer?
Why the contribution is important
UNCRPD Article 25: Persons with disabilities have the right to the highest attainable standard of health without discrimination on the basis of disability. They are to receive the same range, quality and standard of free or affordable health services as provided other persons, receive those health services needed because of their disabilities, and not to be discriminated against in the provision of health insurance.
UNCRPD Article 26: To enable persons with disabilities to attain maximum independence and ability, countries are to provide comprehensive habilitation and rehabilitation services in the areas of health, employment and education.
People can't attain the highest possible standard of health, receive appropriate and high-quality health care or be fully independent if they are fed up with trying to navigate a complex system.
by Rebekah on March 03, 2023 at 08:43AM