20,000+ People in NZ have M.E/CFS with NO Medical Specialist
There are 20,000+ people with M.E/Chronic Fatigue Syndrome and more with Long Covid. There are no Medical Specialists or Specialist Clinics to help us. All we have are GP’s most of which do not or want to understand M.E/CFS. Most Medical professionals still think M.E/CFS is a psychological or psychiatric disease. There is now a wealth of research out there to prove that it is not.
See the new Nice Guidelines for M.E/CFS https://www.nice.org.uk/guidance/ng206/chapter/recommendations
There is an accredited online course for GP’s which most GP's have not done even when they have patients with M.E.
This course should be compulsory for all GP's as they are the only medical help we have.
ME/CFS should be a compulsory subject taught in all Medical Schools in NZ as is now happening in the UK.
We need support clinics that will give patients the tools to find their baseline energy availability and how to build up some activity slowly when appropriate. Also to be able to work with patients to access mobility aids, appropriate medications, care packages and referral to other medical specialities when necessary.
I am an ex Nurse/Midwife who had to leave work due to sudden severe M.E/CFS. I’m guessing no one from Te Whatu Ora ‐ Te Tai Tokerau is going to read this comment but here’s hoping they will!
Why the contribution is important
Because there are 20,000+ people in NZ struggling with this condition with no access to Specialist Support.
by annaustin on March 12, 2023 at 08:20AM
Posted by AceTimelord March 13, 2023 at 06:24
I grew up with both parents diagnosed with CFS, and there was no help, and active harm, from the medical system
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